Tuesday, January 1, 2013

Normal Siblings

Normal siblings don’t have to prepare themselves to be the caretaker of their own brother or sister.

Normal siblings delight in being aunts and uncles, and having an inseparable bond with one another.  Growing old together and enjoying what comes with age as a family.

Reading through Jodi Piccoult’s House Rules, I have read each chapter of this fictional book with awe.

I’ve never met anyone besides my brother who has Asperger’s.  I’ve never met another person who has to care for someone with Asperger’s.

And the way Piccoult lays out chapter by chapter developing the character of not only Jacob, but his mother Emma and brother Theo and their lives as they revolve around Jacob, I don’t feel so alone.  She has captured all my feelings and left them sitting in these pages for me to discover.

“An ordinary mother doesn’t lie awake at night wondering if Theo will ever accept his brother enough to watch over him when I’m gone.”

An ordinary sister doesn’t lie awake at night wondering what will happen upon the day that she receives the responsibility to care for her brother when their parents are too old, too weary.  Dad and I sat and talked one morning recently during one of my trips to California.  He spoke of what should happen if they pass.  The heavy weight of burdened responsibility sat on my shoulders.

“It’s not fair!” my head cried.

“Other people don’t have to think through their lives like this, taking care of someone with Asperger’s.  I never signed up for this!  I want my own family, a husband, and a house where we can be a family.  Not a family plus Steven, a home that has to live in fear of meltdowns and outbursts, and molding ourselves into his world to keep him comfortable.  A life of servitude!  A life of slavery!  I don’t want it!”

I cried these same selfish thoughts today, months later.  What sibling has to lay down their life for another?  What sibling’s wants and needs are overshadowed by that of their brother?  I cursed the will of God, the unwanted path for my life.

I cried, frustrated.  And God sweetly and simply reminded me of one of Bryan’s sermons where he spoke of Jesus and his brother James.

James, a servant of God and of the Lord Jesus Christ (James 1:1).

James recognized his brother’s title of God.  “Now,” Bryan said, “my brothers and sisters called me a lot of things, but God wasn’t one of them.”  That’s an overshadowing title if ever there was one for a sibling.  And what title did James give himself?  The title of servant.  Only servant.

I read part of Lady in Waiting today and was struck by concepts of singleness being precious.

Singleness is an enviable condition.  An unmarried woman has something that a married woman gives up on her wedding day: extra time for Jesus (p. 23)

The single woman can be involved in the Lord’s work on a level that a married woman cannot because of the distractions and responsibilities of being a wife and a mother (p. 18-19)

Although a single woman may long for the “chaos” of a family, she must not waste her time wishing for it.  She must be diligent to use her single time wisely now.  She has more control over her time and choices now than she will probably ever have again (p. 18).

The day will come when my brother passes out of my parents’ care and into my own.  A heart of preparation will be the best route to love him as much as I can.  Today, I am single.  And I have time to myself to grow in my relationship with God without other distractions, and for a purpose.  Every day is a conglomeration of different callings, but all tethered to the cry of one calling.  Following Jesus.

If James can bow to his brother, The King, surely I am called to bow to my own brother.  The brother God personally and lovingly bestowed upon me, entrusting me with a child He loves more dearly than I can imagine.

Be very careful, then, how you live—not as unwise but as wise, making the most of every opportunity, because the days are evil.  Therefore do not be foolish, but understand what the Lord’s will is (Ephesians 5:15-17).